On an almost daily basis, I receive e-mails from people in all parts of the U.S. and other countries asking clinical questions about NF. Most of the time, individuals who e-mail me have run across my ...
It’s important to know that an accurate diagnosis of NF1 can only be made by a physician with expertise in the diagnosis and treatment of neurofibromatosis. Because people with NF1 often have multiple ...
NEUROFIBROMATOSIS is a congenital and hereditary disorder involving ectodermal, neuroectodermal and mesodermal tissue. Café-au-lait spots, cutaneous neurofibromas, tumors of the central and peripheral ...
Cafe-au-lait spots, trouble focusing, tummy troubles, migraines. Heather Wray knew there was something going on with her oldest child, Ethan, but she didn't realize it was all connected. It started ...
Q: My son's doctor said the rashes on his back were "coffee spots," and that meant he may have some kind of nerve disease. We see the specialist in a couple of weeks, but I am hoping you can tell me ...
Q: My son’s doctor said the rashes on his back were “coffee spots,” and that meant he may have some kind of nerve disease. We see the specialist in a couple of weeks, but I am hoping you can tell me ...
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